Participant Information Sheet For Adults
UCL Research Ethics Committee Approval ID Number: 17409/001
Title of Study: Identifying and Tackling Key Barriers to Blood Donation in Young People
Department: Division of Psychology and Language Sciences
Name and Contact Details of the Researcher(s): Freya Mills, firstname.lastname@example.org
Name and Contact Details of the Principal Researcher: Dr Leslie Gutman, email@example.com
You are being invited to take part in a postgraduate research project. Before you decide to volunteer to take part, it is important for you to understand why the research is being done and what participation will involve.
Please take time to read the following information carefully and discuss it with others if you wish. Email the researcher if there is anything that is not clear or if you would like more information.
Take time to decide whether or not you wish to take part.
Thank you for reading this.
What is the project’s purpose?
Currently, in the UK almost half of the blood donation population is over the age of 45. Given that individuals can only donate until they are 70 years of age, it is imperative that more young people donate blood to ensure there is enough blood in the future.
The aim of this study is to identify the main reasons behind young people’s behaviour regarding blood donation in order to inform research to design an intervention to increase young peoples’ intentions to donate and the act of registering to be a donor.
Why have I been chosen?
If you are between the ages of 18 – 29 and proficient in English then you are eligible to participate.
Do I have to take part?
It is up to you to decide whether or not to take part. If you do decide to take part, you can print off this information sheet for future reference and you will be asked to confirm your understanding and consent to giving part.
Also, please be aware that there will be some questions regarding blood. If you feel uncomfortable at any point during the survey you will be able to withdraw at any point during the survey.
Please note that that this survey is anonymous but given the online nature it is not possible to withdraw the data after completion of the survey.
What will happen to me if I take part?
On the next page you will be required to complete some consent questions, after which the survey will begin. You will be given a series of questions, which should take no longer than 30 minutes. The first questions will be basic demographic questions, such as age, occupation and donor history. The following questions will be about blood donation, for example your knowledge, whether you feel able to give blood, your motivation to donate and your expectations surrounding the blood donation experience.
What are the possible benefits of taking part?
Whilst there are no immediate benefits for participating in the project, it is hoped that this work will lead to a better understanding of why young people do not donate blood which can in turn lead to better development of effective interventions to encourage them to donate blood and lead to a larger, more sustainable supply of blood in the UK.
Will my taking part in this project be kept confidential?
All the information that is collected during the course of the research will be kept strictly confidential. This survey will not take any personal information and you will not be able to be identified in any ensuing reports or publications.
Data from this experiment will be deleted by the 1st September 2030. Data may be shared with other researchers to inform future research or review the current study. You will not be identifiable.
Limits to confidentiality
Confidentiality will be respected subject to legal constraints and professional guidelines.
What will happen to the results of the research project?
The results of this research project are intended to inform a following study whereby an intervention is created based on the main barriers to blood donation found in this study. The two surveys combined will form the research paper which is then intended to be published in an academic journal, but you will be not be identifiable in this paper.
Local Data Protection Privacy Notice
The controller for this project will be University College London (UCL). The UCL Data Protection Officer provides oversight of UCL activities involving the processing of personal data, and can be contacted at firstname.lastname@example.org
This ‘local’ privacy notice sets out the information that applies to this particular study. Further information on how UCL uses participant information can be found in our ‘general’ privacy notice: click here
The information that is required to be provided to participants under data protection legislation (GDPR and DPA 2018) is provided across both the ‘local’ and ‘general’ privacy notices.
The categories of personal data used will be as follows: age, donor history and occupation.
The lawful basis that would be used to process your personal data will be performance of a task in the public interest
Your personal data will be processed so long as it is required for the research project. If we are able to anonymise or pseudonymise the personal data you provide we will undertake this, and will endeavour to minimise the processing of personal data wherever possible.
If you are concerned about how your personal data is being processed, or if you would like to contact us about your rights, please contact UCL in the first instance at data- email@example.com.
According to the data protection legislation, ‘public task’ will be the lawful basis for processing.
Contact for further information
For further information, please email Freya Mills at firstname.lastname@example.org
If you have any complaints or concerns, please contact:
Please feel free to print this information sheet for future reference.
Thank you for reading this information sheet and for considering to take part in this research study.